Kelly's Chiari: FRIDAY MORNING

Friday, September 12, 2008

FRIDAY MORNING - 8:00 A.M. EDT

Sorry, nothing new yet. They didn't allow visitors all night. Now they are moving her from the recovery room to the Neurological care room. We should be able to see her within the next hour of so.

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SURGERY COUNTDOWN!

Friends and Family -We leave on September 9th to fly to New York for my surgery. I will be having tests performed on September 10th. My surgery will begin 7:30am NY time on September 11th. Please keep our family in your prayers.Mary will be here with the children and will use Landon's cell phone while we are gone. Charlie will update this blog to keep everyone informed. Please feel free to call Mary, Mom, or Charlie if you have any questions. We will be calling home to update the kids on a daily basis.I appreciate all of the e-mails, phone calls, kind words...I know the children are in great hands. Thank you in advance for doing so much during this time. I am simply grateful that God has given me so much. My life has been such an incredible ride so far with so many incredible memories with all of you....looking forward to many, many more. Your friend, sister, daughter, aunt, wife and mom...kelly

North Shore University Hospital -
300 Community DriveManhasset, New York 11030 - (516) 562-0100

BACKGROUND INFORMATION

I started experiencing symptoms after my third daughter was born in 2000. It started with terrible "sinus" headaches...at least that is what I thought. At first the headaches happened only when I lifted weights, worked out, laughed, etc. I am grateful that I was diagnosed on my first trip to a neurologist. MRI confirmed Arnold Chiari Malformation. The first neurosurgeon recommended surgery. I didn't like the answers he gave me to my many questions. I heard about TCI on the internet. I meet with Dr. B and Dr. Kula at TCI. I was told that I have a retroflexed odontoid. It was explained to me that they would typically recommend surgery for someone in my situation if they were functioning at 70%. However, since I had a RO, I should wait until I was functioning at a 30%. They recommended Dr. M in Iowa City for another opinion. I flew to Iowa City. At this point, I decided to wait for surgery. Now, several years later and another trip to New York, I am scheduled to have surgery September 11, 2008. See links below to sites that provide additional information.The most information on the surgery (for those interested):http://www.chiariinstitute.com/Videos/index.html The Chiari Institute has several videos on their website. Click videos. Click Patient Education. Click Chiari Malformation Surgery. Other links:http://www.chiariinstitute.com/contact_us.html , http://en.wikipedia.org/wiki/Brain_herniation , http://www.csmc.edu/5722.html http://www.csmc.edu/5722.html , http://www.conquerchiari.org/index.htm http://www.conquerchiari.org/newly%20diagnosed_files/frame.htm ,http://www.chiariconnectioninternational.com/
Posted by Kelly at 7:28 PM 5 comments
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Friday, September 12, 2008

FRIDAY MORNING - 8:00 A.M. EDT

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Kelly's Chiari

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Sitting by the pool

Home Sweet Home!!!

CAN I BE CALLED ZIPPER HEAD WITHOUT THE HOLES OF THE STAPLES? NO STAPLES WERE USED ON ME!

The Wrights

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SURGERY COUNTDOWN!

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With my beautiful girls.

Home with my children.

BACKGROUND INFORMATION